| SITE & DATASET | NO (Inc. FU) | ID | DIAGNOSIS | FOLLOW-UP | SCANNER | DATA TYPE | PRIMARY CLINICAL MEASURE |
|---|---|---|---|---|---|---|---|
| KCL_01 | 131 | PSYD_0101 | CHR (56), CHR-FU (30), HC (30), HC_FU (15) | YES | 3T GE | IMG / FS | CAARMS / PANSS |
| KCL_02** | 119 | PSYD_0102 | CHR (85), CHR_FU (2), HC (31), HC_FU (1) | YES | 3T GE | IMG / FS | CAARMS |
| KCL_03 | 58 | PSYD_0103 | FEP (18), CHR (18), HC (22) | 1.5T GE | IMG / FS | CAARMS/ PANSS |
|
| KCL_04 | 26 | PSYD_0104 | SZT (26) | 3T GE | IMG / FS | OLIFE | |
| KCL_05 | 47 | PSYD_0105 | SCZ (32), HC (15) | 3T GE | IMG / FS | PANSS | |
| KCL_06 | 144 | PSYD_0106 | HC (31), HC_FU (5), SCZ (66), SCZ_FU (42) | 1.5T GE | FS | PANSS | |
| KCL_08 | 38 | PSYD_0108 | SCZ (19), SCZ_FU (19) | 3T GE | FS | PANSS | |
| KCL_09 | 43 | PSYD_0109 | SCZ (30), HC (13) | GE | FS | PANSS | |
| KCL_10 | 37 | PSYD_0110 | FEP (18), HC (19) | 3T GE | IMG / FS | PANSS | |
| KCL_11 | 25 | PSYD_0111 | CHR (8), FEP (12), HC (5) | 1.5T GE | FS | PANSS | |
| KCL_12 | 142 | PSYD_0112 | BPD (41), BPD-R (51), HC (50) | GE | FS | TBC | |
| KCL_13 | 6 | PSYD_0113 | CHR (6) | FU for KCL_02 | 3T GE | IMG / FS | CAARMS |
| KCL_14 | 47 | PSYD_0114 | CHR (45), CHR_FU (2) | FU for KCL_02 | 3T GE | IMG / FS | CAARMS |
| KCL_15 | 12 | PSYD_0115 | SCZ (12) | 3T GE | IMG / FS | CAARMS | |
| KCL_17 | 28 | PSYD_0117 | SCZ (28) | 3T GE | IMG / FS | PANSS | |
| KCL_18 | 57 | PSYD_0118 | SCZ (28), ASPD (13), HC (15) | 3T GE | FS | PANSS | |
| KCL_19 | 45 | PSYD_0119 | SZT (45) | 3T GE | IMG / FS | SPQ / O-LIFE | |
| KCL_20 | 304 | PSYD_0120 | FEP (117), FEP-FU1 (58), FEP-FU2 (35), HC (94) | YES | 3T GE | IMG / FS | PANSS |
| KCL_21 | 291 | PSYD_0121 | FEP (99), FEP-FU (51), HC (95), HC-FU (46) | YES | 1.5T GE | IMG / FS | NO |
| BIRMINGHAM_01 | 42 | PSYD_0301 | CHR (12), FEP (7), ROD(7), HC(16) | 3T Philips | IMG / FS | PANSS / SIPS-P PANSS |
|
| BIRMINGHAM_02 | 28 | PSYD_0302 | SCZ (18), SCZ-FU (10) | 3T Philips | IMG / FS | BAVQ-R | |
| CAMBRIDGE_01 | 40 | PSYD_0401 | SCZ (20), HC (20) | YES | 3T Siemens | IMG / FS | PANSS |
| CAMBRIDGE_02 | 107 | PSYD_0402 | FEP (22), CHR (34), HC (51) | 3T Siemens | IMG / FS | PANSS | |
| CAMBRIDGE_03 | 66 | PSYD_0403 | SCZ (21), DEP (24), HC (21) | 3T Siemens | IMG / FS | PANSS | |
| NIMHANS_01 | 81 | PSYD_0601 | SCZ (81) | YES | 3T Siemens | IMG / FS | PANSS |
| NIMHANS_02 | 59 | PSYD_0602 | SCZ (59) | YES | 3T Siemens | IMG / FS | SAP / SANS |
| NIMHANS_03 | 25 | PSYD_0603 | SCZ (25) | 3T Siemens | IMG / FS | PANSS | |
| NIMHANS_04 | 24 | PSYD_0604 | SCZ (24) | 3T Siemens | IMG / FS | SAP / SANS | |
| NIMHANS_05 | 45 | PSYD_0605 | SCZ (45) | 3T Siemens | IMG / FS | SAP / SANS | |
| EDINBURGH_01 | 92 | PSYD_0701 | SCZ (34), BPD (18), HC (40) | 3T Siemens | IMG / FS | PANSS | |
| CUBIC_01 | 58 | PSYD_0801 | CT (58) | 3T Siemens | IMG / FS | CTQ | |
| CUBIC_02 | 53 | PSYD_0802 | SZT (58), nb.LSZT (26), LSZT (27) | 3T Siemens | IMG / FS | SPQ | |
| CUBIC_03 | 22 | PSYD_0803 | SZT (22) | 3T Siemens | IMG / FS | SPQ | |
| LUBECK_01 | 194 | PSYD_1101 | FEP (77), CHR (73), HC (44) | 3T Siemens | FS | BPRS | |
| JOHN_HOPKINS_01 | 189 | PSYD_1601 | FEP (96), HC (93) | NO | Philips MRI | IMG / FS | SCID, SANS / SAPS |
| LMU_MUNICH_01 | 407 | PSYD_1801 | SCZ + BPD + MDD (217), HC (190) | NO | 3T Siemens | IMG / FS | PANSS / BACS |
| NAPLES_01 | 104 | PSYD_1901 | SCZ (49), HC (55) | NO | 3T Siemens | IMG / FS | PANSS |
| TOYAMA_01 | 215 | PSYD_2101 | SCZ (77), CHR (51), HC (87) | NO | 3T Siemens | IMG / FS | PANSS / CAARMS |
| MEXICO_01 | 99 | PSYD_2201 | FEP (49), HC (50) | NO | 3T Siemens | IMG / FS | PANSS |
| ZURICH_01 | 119 | PSYD_2401 | SCZ (40), HC (79) | NO | 3T Philips | IMG / FS | OLIFE / MSS / PANSS |
| GEORGIA_01 | 200 | PSYD_2501 | SCZ (100), HC (100) | NO | 3T Siemens | IMG / FS | QOL / UPSA |
| SINGAPORE_01 | 79 | PSYD_2601 | CT (39), HC (40) | NO | 3T Siemens | IMG / FS | PQB / CTQ |
| TOTAL | 3948 |
* = Datasets where a data
shraing agreement is in place but sample size cannot be confirmed
** = Datasets
where follow-up data has a different PSYD code
IMG = Image data
availible, FS = FreeSufer data Availible
Memorandum of Understanding (MoU) for Data Access
The Data Access process is governed by a Memorandum of Understanding (MoU), ensuring that all parties agree on the terms of data use, security, and privacy. The MoU defines the roles and responsibilities of the data provider and the requesting party. All users must agree to the MoU before any data can be accessed. See - MoU Documents.
Data Access Procedure
The data access procedure
involves several steps to ensure compliance with data protection policies and fair use
practices. Upon submission of the Data Access Request form, applicants should anticipate a
processing period of several weeks, contingent upon the institution’s administrative
procedures. It is advisable to account for this timeframe in your planning. For a detailed
overview of the process, please refer to the figure below:
Data Access Form
To access the data, please fill out the following request form and send it to psy_shared@kcl.ac.uk. Once submitted, your request will be reviewed, and further instructions will be provided.
| Abbreviation | Definition |
|---|---|
| SCZ | Schizophrenia |
| FEP | First episode psychosis |
| FHR | Familial high risk (FHR) for psychosis |
| SZT | Schizotypy |
| BPD | Bipolar disorder |
| CT | Experience of childhood trauma |
| HC | Healthy controls |
| Psychosis / Functioning | |
| PANSS | Positive and negative symptom scale |
| SAP/SANS | Scales for assessments of positive/negative symptoms |
| CAARMS | Comprehensive assessment of at-risk mental state |
| PSYRATS | Psychosis Rating Scales |
| GAF | General assessment of functioning |
| FIGS | Functioning scale in psychosis |
| PQ-B | The Prodromal Questionnaire-Brief version |
| Depression / Anxiety | |
| HAM- A | Hamilton anxiety |
| HAM-D | Hamilton depression |
| DASS | Depression, anxiety, stress scale |
| BDI | Beck depression inventory |
| Personality | |
| O-LIFE | Oxford and Liverpool inventory for feeling and experience |
| SPQ | Schizotypal personality scale |
| EPQ | Eysenck Personality scale |
| Trauma | |
| CTQ | Childhood trauma questionnaire |
| Cognition / IQ | |
| NART IQ | National Adult Reading Test (IQ estimate) |
| WRAT IQ | Wide Range Achievement Test (IQ estimate) |
| WASI IQ | Wechsler Abbreviated Scale of Intelligence |
| WAIS (digit span, cognitive processing speed) VF | WAIS Verbal Fluency (executive function) |
| WCST | Wisconsin Card Sort Test (executive function) |
| HVLT | Hopkins Verbal learning test (verbal leraning) |